I think, I first denied it, but later had to accepted it... I was very lucky because (from the beginning) I was treated in Queens Square, the best neurologists work there. They tried everything: different pills, plasters, pump etc. Nothing help like DBS. Prof Foltynie and prof Warner are great! I always felt safe in this hospital, that they know what they were doing. I tried to hide my illness, but tremors and dyskinesia was very visible.

Now I only take Sinemet, Amantadine, Rasagiline. 

Thank you for creating this website, hopefully more people will join us soon!  

Hi

im 44 and been diagnosed just over 4 years.  I’m just starting my dbs journey and have just been accepted for assessment for it at the rvi in Newcastle.  I’m only on low dose of meds at the moment but struggling with dyskinesia and dystonia.